FOR PATIENTS

Once you know you or your loved one need to start tube feeding, you might be overwhelmed with all the information you’ll receive and the thought of doing this at home. To begin to feel more empowered, it’s important to understand tube feeding and what it means for you, gain control over its impact on your life and know how to make informed decisions.

Asking the right questions to your healthcare team is critical. There might be different options available to you and you should be part of the decision regarding which ones best suit your life and needs.

By preparing or writing down your tube feeding questions before seeing your healthcare team, you can be sure you won’t forget them. You also might want to take someone with you. A friend or family member can help give you the confidence to ask questions, express your concerns and remember information.

Suggested content:

How to find the right support

  • Asking the right question
  • Looking for options to make informed decision
  • Finding what’s right for you
  • Knowing what information, services and support you’re entitled to

Why the need for advocacy?

  • Although you’ll have support once you go home with tube feeding, it will be you making many decisions on your own
  • Being better informed and more confident will ease the transition
  • You’ll know where to go for needed support and information, and how to ask for it

How do you become an advocate?

  • Make opportunities for asking questions, and push for answers
  • Find local organisations to learn what you’re entitled to
  • Connect with others who have been through it before to learn about practicalities and tips

Write down your questions before seeing your Consultant.

FOR PARENTS

Once you know your child needs to start tube feeding, you might be overwhelmed with all the information you’ll receive and the thought of doing this at home. To begin to feel more empowered, it’s important to understand tube feeding and what it means for you and your child, gain control over its impact on your life and know how to make informed decisions for your child.

Asking the right questions to your healthcare team is critical. There might be different options available to your child and you should be part of the decision regarding which ones best suit your life and needs.

By preparing or writing down your tube feeding questions before seeing your child’s healthcare team, you can be sure you won’t forget them. You also might want to take someone with you. A friend or family member can help give you the confidence to ask questions, express your concerns and remember information.

Suggested content:

How to find the right support

  • Asking the right questions
  • Looking for options to make informed decisions
  • Finding what’s right for you and your child
  • Knowing what information, services and support you’re entitled to

Why the need for advocacy?

  • Although you’ll have support once you go home with tube feeding, it will be you making many decisions on your own
  • Being better informed and more confident will ease the transition
  • You’ll know where to go for needed support and information, and how to ask for it

How do you become an advocate?

  • Make opportunities for asking questions, and push for answers
  • Find local organisations to learn what you’re entitled to
  • Connect with other parents who have been through it before to learn about practicalities and tips

Write down your questions before seeing your child’s Consultant