FOR PATIENTS

Being discharged with tube feeding and going home can be a time of mixed emotions. You may feel a sense of relief because you or your loved one is leaving the hospital, but you may also feel concerned and anxious about home tube feeding, how to look after the tube and coping day-to-day.

It will take time to get used to this new way of life for you or your loved one. Even with all your healthcare team’s support and guidance, there will be quite a bit of learning along the way. It may seem daunting right now, but you will figure out how to adapt your personal and social life so tube feeding doesn’t dictate your every moment.

Only with time and some experience will you discover the easiest clothing to wear if you have to feed while out or how to join friends in food-centred celebrations.

Leaving the hospital also might feel like you’re leaving round-the-clock care and support. But even at home, from the start of your transition to years down the road, there is plenty of long-term care and support for you and your family.

As with any big change, you’re going to go through a period of adjustment. Ultimately the aim is for you to get used to tube feeding, and begin to enjoy all the benefits that tube feeding can provide.

Download a checklist of questions to ask before going home.

FOR PARENTS

Being discharged from hospital and returning home with your child can be a time of mixed emotions. You may feel a sense of relief because your child will finally be home, and your time won’t be stretched between hospital and your other family commitments. But you may also feel concerned and anxious about how to look after your child and cope with his or her tube feeding day-to-day.

It will take time to get used to this new way of life for you and your family. Even with all your healthcare team’s support and guidance, there will be quite a bit of learning along the way. Only with time and some experience will you discover how to keep your child from snagging his or her tube, or how to involve your child in food-centred celebrations. It may seem daunting right now, but you will figure out how to adapt your personal and social life so tube feeding doesn’t dictate your every moment.

Leaving the hospital also might feel like you’re leaving round-the-clock care and support. But even at home, from the start of your transition to years down the road, there is plenty of long-term care and support for you and your family.

As with any big change, you’re going to go through a period of adjustment. Ultimately the aim is for you, your child and family to get used to tube feeding, and begin to enjoy all the benefits that tube feeding can provide for your child.

Download a checklist of questions to ask before going home.