FOR PATIENTS

Tube feeding can be a life-saving change, but also a life-altering one. Nearly every aspect of your life will be affected by tube feeding, and with time and experience, you’ll learn how to adjust and adapt. Relationships with your family and friends might shift. How you socialise or what activities and hobbies you continue (or have time for) may change. There are new considerations to take when deciding where to go for holiday or whether or not you can continue to work.

As you face the challenges and celebrate your triumphs, it’s important you know that you’re not alone in this. There are many people who are going through the same situation. It might help to talk about your situation and share your experiences with others, or to find supportive networks in your area where you can meet other people who are living with tube feeding.

Here, other people like you share their own experiences living with tube feeding. Listen to their personal stories and benefit from their wise, honest and sometimes humourous tips on how to live life to the fullest. And if you have a question about anything, check out our Patient & Carer FAQs.

FOR PARENTS

Tube feeding can be a life-saving change, but also a life-altering one. Nearly every aspect of your life and your child’s will be affected by tube feeding, and with time and experience, you’ll learn how to adjust and adapt. Relationships with your partner, family and friends might shift. How you socialise or what activities and hobbies you continue (or have time for) may change. There are new considerations to take when deciding where to go for holiday, whether or not you can continue to work and how your son or daughter can continue to enjoy a fulfilling childhood.

As you face the challenges and celebrate your triumphs, it’s important you know that you’re not alone in this. There are many parents who are going through the same situation. It might help to talk about your situation and share your experiences with other parents, or to find supportive networks in your area where you can meet other parents who are looking after children with tube feeding.

Here, other people like you share their own experiences living with tube feeding. Listen to their personal stories and benefit from their wise, honest and sometimes humorous tips on how to live life to the fullest. And if you have a question about anything, check out our Patient & Carer FAQs.